I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or… View Post

When your child is disabled or has sensory issues oral health care can be extremely difficult. Some people with cerebral palsy will struggle with oral hygiene for many factors. Struggling to clean teeth regularly, having difficulties eating or swallowing can play a huge part. Even having behavioural problems caused by not being able to communicate.… View Post

Recently Olivia came home from nursery with a DVD it showed her having a therapy session & children in her group playing with her, it just reminded me how much I love her nursery. Having somewhere so close to our house that caters for Olivia's needs is beyond amazing. It's the kind of place that… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages… View Post

Children with feeding tubes have them for numerous reasons Olivia has hers because she had an unsafe swallow, cows protein & soy allergy. She was dangerously underweight last year & an NG tube was inserted. We’ve experimented with various meals & supplements this is what we’ve recently discovered that have made a huge impact on… View Post

A common misconception is “you will eat if you’re hungry”. I can tell you first hand this is incorrect, my four-year-old was pretty much starving herself because she couldn’t physically eat, yet she was so hungry it was frightening. I could hear her stomach rumble, I could see her mouth opening asking for food, I witnessed… View Post

When the time came for Olivia to start using a specialised buggy I honestly had no clue what to expect. Due to Olivia’s small size, we’d gotten away with using a “regular” pram for quite a while. With Olivia having spastic Quadriplegic cerebral palsy we found that she needed significantly more head & trunk support,… View Post

Being a Mother is arguably the hardest job in the world, it doesn’t come with an instruction manual listing step by step, day to day How to proceed. We are all just going through Parenthood as best we can. It’s a learning process that simply never ends. Does it differ when you have a Premature… View Post

Bringing up a child opens up a certain level of self-doubt within yourself. First of all, It’s not uncommon during Motherhood, after all, you’re responsible for another human beings life. This amount of responsibility is sometimes overwhelming and as a result of this, I question everything. Will I be a good enough mother? Will I… View Post

When your child has been officially registered as blind but has vision. Late last year Olivia received a diagnosis of CVI known as Cortical visual impairment. This means the eye takes a normal picture of the object and sends the message to the brain, The message is not properly processed or integrated because of the… View Post