I will never forget the day I was wheeled into NICU the environment was scary, sombre even. Being wheeled up to an incubator housing a 1lb15oz human being, first introduction to my daughter not being allowed to hold her barely being allowed to touch her. I remember the day I finally got to participate in… View Post

Disability, Mental Health & Family life.

Disability, Mental Health & Family life.

I’ve thought about this post long and hard since before I first created my blog, “How does having a child with a neurological disorder affect relationships” How does Disability and Mental Health affect family life? 21% of families with a disabled child say that isolation has led to the break up of their family life.… View Post

What nobody tells you when your child is …

What nobody tells you when your child is born prematurely.

Being a Mother is arguably the hardest job in the world, it doesn’t come with an instruction manual listing step by step, day to day How to proceed. We are all just going through Parenthood as best we can. It’s a learning process that simply never ends. Does it differ when you have a Premature… View Post

Will they? Will I? Motherhood worries.

Will they? Will I? Motherhood worries.

Bringing up a child opens up a certain level of self-doubt within yourself. First of all, It’s not uncommon during Motherhood, after all, you’re responsible for another human beings life. This amount of responsibility is sometimes overwhelming and as a result of this, I question everything. Will I be a good enough mother? Will I… View Post

CVI Diagnoses & being registered blind

CVI Diagnoses & being registered blind

When your child has been officially registered as blind but has vision. Late last year Olivia received a diagnosis of CVI known as Cortical visual impairment. This means the eye takes a normal picture of the object and sends the message to the brain, The message is not properly processed or integrated because of the… View Post

Health Diagnoses… Now what?

Health Diagnoses… Now what?

Parenting is perhaps the most difficult journey most of us will ever embark on. Parenting a child with additional needs adds a degree of complexity. Now, we’re 4 years on from official cerebral palsy diagnoses nothing has really changed with regards to medication or therapy. What do you do when you receive a diagnosis regarding your… View Post

Packing for a (short) hospital stay

Packing for a (short) hospital stay

When you have a child who has a neurological disorder hospital becomes second nature, you spend a great deal of time there. Sometimes it’s numerous hospitals. You meet an overwhelming amount of professionals involved in your child’s life. We’ve been to a hospital more times than I can count this includes long stays. Over time… View Post

New year, New me? 

New year, New me? 

HAPPY NEW YEAR ✨ 365 new days 365 new chances When I think about 2016 it gets me a tad emotional, as I sit here drinking a glass of processco looking through the past year in photos, I’m reminded of how much we’ve been through as a family. Each and every year will have its… View Post

Birthday letter to my better half

Birthday letter to my better half

Dear Michael, Each day you inspire me. You wake up and conquer each day with a strong will and determination. I am so grateful for all of the hours and hard work you endure for us and our future.  You loved me when I was broken, you rescued me from despair. You wrapped your arms around… View Post

Being strong and finding Strength 

Being strong and finding Strength 

So I’m going to pretty blunt and put it out there, I’ve had a pretty shitty and difficult year. I completely lost myself… Every feeling I had put on hold for years began to consume me. There have been moments where I’ve wanted to give up, where I’ve wanted to give in. Give into self-destruction,… View Post