It’s been roughly 8 weeks since Olivia had her NG tube and we’ve received her operation date for a Gtube, things are moving quickly thankfully. As soon as she gets her Gtube we can finally begin hydrotherapy! We’ve got less chance of vomiting and it will be even easier to feed Olivia. Anyway back to… View Post

A home filled with Adaptive equipment 

A home filled with Adaptive equipment 

It was a bit difficult at first to have our house filled with adaptive equipment, seeing my baby measured for every aspect of her life from eating, standing, playing, sleeping and bathing was intense emotionally. Before my eyes, she had gone from Olivia the baby to Olivia who required equipment for disabled children. Obviously, those… View Post

Decision for an NG Tube 

Decision for an NG Tube 

Many medical conditions and diseases, along with plenty of other factors may require people the need for tube feeding. Depending on the situation they can be used solely for nutrition, or assistance whilst eating by mouth. In the Summer of 2015, Olivia suffered from a horrendous stomach bug which resulted in a dairy, soy and… View Post

Letter To my Daughters

Letter To my Daughters

I promise I will hold you tight I will comfort you when you cry I can’t promise you easy days without clouds and darkness or that tomorrow will be perfect However, I can promise that during those days I will hold you close and cuddle you until the sun sets I can promise you my… View Post

Our blenderized diet experience so far

Our blenderized diet experience so far

We are now about four months into the blenderized diet. The results so far: – Olivia has gained almost double her body weight going from a scary 13lbs to 23.5lbs – Vomiting every single feed we were capable of getting in her to barely spitting up – Olivia went from severe constipation – severe diarrhoea… View Post

Induction, Stitches and Nicu : My birth story 

Induction, Stitches and Nicu : My birth story 

19th August 2015 – 8 days old When we discovered Sofiya had suffered a perinatal stroke in her occipital lobe, we were shocked, to say the least. I had always associated having a stroke with older people. Discovering it’s common for a newborn baby to suffer from one left me completely dumbfounded. The Consultant pulled… View Post

The Early Days ~ part two 

The Early Days ~ part two 

Coming home, Today and everything in between. We came home in March 2013 and as I’m writing this its November 2016. A lot has happened in the last 3 years, Epilepsy diagnoses, feeding tubes, Surgeries and having another baby Sofiya Poppy Koropisz.  We enjoyed the typical family life of having a newborn baby, and for… View Post

The Early days – Our story of Love & hope : …

The Early days – Our story of Love & hope : My birth story

We spent 3 months living in 3 different hospitals, Whilst our daughter fought for her life. Here is our story. Hiding away at the very end of the maternity ward there is a completely different world. It’s almost as if it’s being kept a secret from the unsuspecting parents to be coming to give birth,… View Post

Fear is a liar 

Fear is a liar 

“I feared because it was too early, I cried because it was too soon. Yet I underestimated the strength in one so small.”  World prematurity day ~ 17.11.16 The above was my Instagram post I published in support of world prematurity day, Even though it’s been almost 4 years since Olivia was born reminiscing is… View Post