Being a Mother is arguably the hardest job in the world, it doesn’t come with an instruction manual listing step by step, day to day How to proceed. We are all just going through Parenthood as best we can. It’s a learning process that simply never ends. Does it differ when you have a Premature baby?
You can read every baby book out there in preparation. However what happens when your child is born prematurely? When for months they have been cared for under hospital supervision.
What happens when the day arrives to take your premature baby home?
How do you keep going when the worst has happened? What do you have to change to carry on? Who do you have to become?
14.03.2014 – We brought Olivia home after spending three long months in NICU. I remember clearly the day arriving with your car seat & outfit. If you had seen me you’d think I was just another excited family member arriving through the maternity ward to welcome our new family member. Except I walked to the right and down to the neonatal unit. Instead of receiving my Tommy’s baby pack & taking a million pictures in the hallway I practically ran out of the place! We never thought this day would come. I was briefed on quite a collection of medication & given special formula with instructions to go straight to the Drs to place a prescription.
I dressed her in an outfit easily mistakable for a doll, we said our goodbyes to the amazing nurses who cared for her. I’m not going to lie there were tears also exchanged, and we left.
We walked out of that hospital feeling “normal” only I knew we were anything but.
I left that hospital a completely different person. I was a Mother.
We left the hospital as Mother and daughter and it felt great.
The Drs never told me you wouldn’t grow quickly like other babies, you stayed in premature clothes for quite some time.
Drs never told me you would scream for some 10 hours straight simply because you had brain damage.
The Drs never told me we would be back so regularly. When they gave us open access to the children’s ward (meaning we never have to go through A&E) I naively laughed inside.
We were never told we wouldn’t get official diagnoses until you were three.
There was no detailed explanation of what to expect with cerebral palsy. It is such a complex condition with so much variability no two people are ever the same.
What works for one child may never work for another.
Our journey has been a little out of the ordinary from day one.
It’s been quite a whirlwind.