I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or… View Post

I couldn’t help but notice that a well-known blogger Harriet from Toby & roo was the talk of the blogosphere and as somebody who’s followed her blog I was intrigued. Her blog post DNA ENGINEERING TO PREVENT DISABILITIES:: WHY I THINK WE SHOULD PLAY GOD has caused quite a shit storm. As a mother of… View Post

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular… View Post

Recently Olivia came home from nursery with a DVD it showed her having a therapy session & children in her group playing with her, it just reminded me how much I love her nursery. Having somewhere so close to our house that caters for Olivia's needs is beyond amazing. It's the kind of place that… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages… View Post

Children with feeding tubes have them for numerous reasons Olivia has hers because she had an unsafe swallow, cows protein & soy allergy. She was dangerously underweight last year & an NG tube was inserted. We’ve experimented with various meals & supplements this is what we’ve recently discovered that have made a huge impact on… View Post

If you’ve been here from the beginning (which honestly, wasn’t too long ago) when I created this blog you will see I’ve deterred from my original “niche” It certainly isn’t intentional as raising awareness for Periventricular leukomalacia until everybody understands is still my ultimate goal, it’s just some days are easier spreading that message than… View Post

As a parent of a child with multiple special needs its tough to not have your typical Mummy surrounding who can relate to you and vice versa. People who can understand that what seems like an ordinary family on the outside, there’s a lot going on behind the scenes that nobody sees. Due to Olivia’s neurological… View Post

I’ve thought about this post long and hard since before I first created my blog, “How does having a child with a neurological disorder affect relationships” How does Disability and Mental Health affect family life? 21% of families with a disabled child say that isolation has led to the break up of their family life.… View Post

Being a Mother is arguably the hardest job in the world, it doesn’t come with an instruction manual listing step by step, day to day How to proceed. We are all just going through Parenthood as best we can. It’s a learning process that simply never ends. Does it differ when you have a Premature… View Post