I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or lack thereof) rather than looking at the heart.  What’s most important to realise after learning of said disability, is learning… View Post

Whilst many people have Narcissistic triats only a select few are true narcissists right down to the bone. In this day and age, with the social media boom, narcissism is in our culture.  What happens when your own parent/s have this personality trait? How is your life affected? To outsiders, your parent/s portray the perfect image always looking to please and juggling everything with ease. They are probably social magnets who attracts people from all… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages from nerve cells in the brain so damage to the white matter can cause problems with movement and other body… View Post

If you’ve been here from the beginning (which honestly, wasn’t too long ago) when I created this blog you will see I’ve deterred from my original “niche” It certainly isn’t intentional as raising awareness for Periventricular leukomalacia until everybody understands is still my ultimate goal, it’s just some days are easier spreading that message than others. Somedays The words flow and the sentences form other days…Nothing! I can’t think of many other experiences where you… View Post

 Recently several people I really care about are no longer apart of my life. It’s not easy; relationship breakdowns especially family related can be among the most painful experiences in life. Loss of any kind is tough, but loss like this can sting like none other. I wrote a previous post touching on the subject of “Why” which you can read here. After this was posted it stirred up a few emotions from myself and… View Post

This September, a soon to be five-year-old Olivia will leave The Early Intervention programme. The natural next step for most families, with a child with significant physical disabilities, is to then begin transitioning their child from a home-based therapy programme to a special needs school. Luckily we have chosen a school (which we’ve just received our confirmation) where all therapy takes places during education hours. Including hydrotherapy! Our lives are primarily spent with intervention, we’re… View Post

New Year’s resolutions – rarely have they actually been seen through but I love thinking about them mid-year. I never promise myself come January as I think it adds too much pressure. However a few months later I Take some time to reflect on the past, the good, the bad and the ugly. Positively plan my year ahead, getting excited about what’s to come and thinking about to how to enjoy it to the full.… View Post

Dear somebody, There’s a quote I come across recently “People will forget about what you said, they will forget about what you did but they will never forget how you made them feel”. That day all I thought about was walking into busy traffic. You hurt me more than I ever thought was capable. The day began like any other to some we seemed like best friends, a relationship people envied since I was small.… View Post

At some stage in our lives, many of us take on the additional role as “caregiver” Perhaps it’s to look after a chronically sick child or help an ageing family member. The term Caregiver burnout, caregiver stress or burden call it what you will, it’s overwhelming and if left unchecked the stress can certainly take its toll. I’m open and honest about my mental health, that’s half of the reason this blog exists. I guess… View Post

WOW, I can’t believe this was taken almost 11 years ago! How much we didn’t know and how much we thought we knew! Childfree and carefree teenagers with not a single worry in the world! No idea that in 7 years we would have a family together, knee deep in nappies and able to understand the complex medical jargon. Midweek partying a distance memory and now singing along to Disney soundtracks on REPEAT! Having babies… View Post