If you’ve been here from the beginning (which honestly, wasn’t too long ago) when I created this blog you will see I’ve deterred from my original “niche” It certainly isn’t intentional as raising awareness for Periventricular leukomalacia until everybody understands is still my ultimate goal, it’s just some days are easier spreading that message than… View Post

 Recently several people I really care about are no longer apart of my life. It’s not easy; relationship breakdowns especially family related can be among the most painful experiences in life. Loss of any kind is tough, but loss like this can sting like none other. I wrote a previous post touching on the subject… View Post

This September, a soon to be five-year-old Olivia will leave The Early Intervention programme. The natural next step for most families, with a child with significant physical disabilities, is to then begin transitioning their child from a home-based therapy programme to a special needs school. Luckily we have chosen a school (which we’ve just received… View Post

New Year’s resolutions – rarely have they actually been seen through but I love thinking about them mid-year. I never promise myself come January as I think it adds too much pressure. However a few months later I Take some time to reflect on the past, the good, the bad and the ugly. Positively plan… View Post

Dear somebody, There’s a quote I come across recently “People will forget about what you said, they will forget about what you did but they will never forget how you made them feel”. That day all I thought about was walking into busy traffic. You hurt me more than I ever thought was capable. The… View Post

At some stage in our lives, many of us take on the additional role as “caregiver” Perhaps it’s to look after a chronically sick child or help an ageing family member. The term Caregiver burnout, caregiver stress or burden call it what you will, it’s overwhelming and if left unchecked the stress can certainly take… View Post

WOW, I can’t believe this was taken almost 11 years ago! How much we didn’t know and how much we thought we knew! Childfree and carefree teenagers with not a single worry in the world! No idea that in 7 years we would have a family together, knee deep in nappies and able to understand… View Post

Social media may have its flaws, however since i created this blog i am more aware of families and their struggle raising children where disability has to be accounted for. Raising children is challenging enough. The difficulty level raises when you have to attempt to explain to your child that their sibling has a cognitive,… View Post

I’ve thought about this post long and hard since before I first created my blog, “How does having a child with a neurological disorder affect relationships” How does Disability and Mental Health affect family life? 21% of families with a disabled child say that isolation has led to the break up of their family life.… View Post