I couldn’t help but notice that a well-known blogger Harriet from Toby & roo was the talk of the blogosphere and as somebody who’s followed her blog I was intrigued. Her blog post DNA ENGINEERING TO PREVENT DISABILITIES:: WHY I THINK WE SHOULD PLAY GOD has caused quite a shit storm. As a mother of… View Post

There has been a lot in the news these past few months which reminded me of our daughter, Olivia who 5 years ago was born dangerously premature at 28 weeks. The news along with family conversation has reminded me how extremely thankful we were, and are for the NHS doctors & nurses who fought to… View Post

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular… View Post

Whilst many people have Narcissistic triats only a select few are true narcissists right down to the bone. In this day and age, with the social media boom, narcissism is in our culture.  What happens when your own parent/s have this personality trait? How is your life affected? To outsiders, your parent/s portray the perfect… View Post

Have you Ever woken up on the wrong side of the bed and just felt, meh!?! Ever had an argument with someone that has put you in the worst mood EVER? I actually wake up feeling like this quite regularly, An important decision needs to be made! I can either roll over & forget the… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages… View Post

Children with feeding tubes have them for numerous reasons Olivia has hers because she had an unsafe swallow, cows protein & soy allergy. She was dangerously underweight last year & an NG tube was inserted. We’ve experimented with various meals & supplements this is what we’ve recently discovered that have made a huge impact on… View Post

Over the years I have tried many different ways to learn how to love ME, flaws & all. For the most part growing up, I always believed I needed to be thin to be happy, to be attractive & to be successful. I’ve abused diet pills, I survived off 1 banana & 1 bowl of… View Post

If you’ve been here from the beginning (which honestly, wasn’t too long ago) when I created this blog you will see I’ve deterred from my original “niche” It certainly isn’t intentional as raising awareness for Periventricular leukomalacia until everybody understands is still my ultimate goal, it’s just some days are easier spreading that message than… View Post

This September, a soon to be five-year-old Olivia will leave The Early Intervention programme. The natural next step for most families, with a child with significant physical disabilities, is to then begin transitioning their child from a home-based therapy programme to a special needs school. Luckily we have chosen a school (which we’ve just received… View Post