2 important ways to Embrace & support your special needs child

I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or lack thereof) rather than looking…

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Campaigning for important changes! #ChangingPlaces

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular leukomalacia, more commonly known –…

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Why I’m sad Olivia’s leaving nursery

Recently Olivia came home from nursery with a DVD it showed her having a therapy session & children in her group playing with her, it just reminded me how much I love her nursery. Having somewhere so close to our house that caters for Olivia's needs is beyond amazing. It's the kind of place that if your child has additional…

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10 Things you should know for a better understanding about Cerebral Palsy / Periventricular …

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages from nerve cells in the…

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Feeding Tube Awareness week. 

A common misconception is “you will eat if you’re hungry”. I can tell you first hand this is incorrect, my four-year-old was pretty much starving herself because she couldn’t physically eat, yet she was so hungry it was frightening. I could hear her stomach rumble, I could see her mouth opening asking for food, I witnessed her dramatic weight loss. She…

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