I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or… View Post

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular… View Post

Recently Olivia came home from nursery with a DVD it showed her having a therapy session & children in her group playing with her, it just reminded me how much I love her nursery. Having somewhere so close to our house that caters for Olivia's needs is beyond amazing. It's the kind of place that… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages… View Post

A common misconception is “you will eat if you’re hungry”. I can tell you first hand this is incorrect, my four-year-old was pretty much starving herself because she couldn’t physically eat, yet she was so hungry it was frightening. I could hear her stomach rumble, I could see her mouth opening asking for food, I witnessed… View Post

When your child has been officially registered as blind but has vision. Late last year Olivia received a diagnosis of CVI known as Cortical visual impairment. This means the eye takes a normal picture of the object and sends the message to the brain, The message is not properly processed or integrated because of the… View Post