I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or… View Post

I couldn’t help but notice that a well-known blogger Harriet from Toby & roo was the talk of the blogosphere and as somebody who’s followed her blog I was intrigued. Her blog post DNA ENGINEERING TO PREVENT DISABILITIES:: WHY I THINK WE SHOULD PLAY GOD has caused quite a shit storm. As a mother of… View Post

There has been a lot in the news these past few months which reminded me of our daughter, Olivia who 5 years ago was born dangerously premature at 28 weeks. The news along with family conversation has reminded me how extremely thankful we were, and are for the NHS doctors & nurses who fought to… View Post

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular… View Post

Whilst many people have Narcissistic triats only a select few are true narcissists right down to the bone. In this day and age, with the social media boom, narcissism is in our culture.  What happens when your own parent/s have this personality trait? How is your life affected? To outsiders, your parent/s portray the perfect… View Post

If you’ve been here from the beginning (which honestly, wasn’t too long ago) when I created this blog you will see I’ve deterred from my original “niche” It certainly isn’t intentional as raising awareness for Periventricular leukomalacia until everybody understands is still my ultimate goal, it’s just some days are easier spreading that message than… View Post

This September, a soon to be five-year-old Olivia will leave The Early Intervention programme. The natural next step for most families, with a child with significant physical disabilities, is to then begin transitioning their child from a home-based therapy programme to a special needs school. Luckily we have chosen a school (which we’ve just received… View Post

New Year’s resolutions – rarely have they actually been seen through but I love thinking about them mid-year. I never promise myself come January as I think it adds too much pressure. However a few months later I Take some time to reflect on the past, the good, the bad and the ugly. Positively plan… View Post

My Daughter is turning 5 this year. Every day I look at her and I’m completely amazed by how far she has come. Our Mother/daughter relationship is unconventional yet she teaches me as much as I am teaching her. Say what you want and do not be afraid to say no Olivia may be non-verbal… View Post

At some stage in our lives, many of us take on the additional role as “caregiver” Perhaps it’s to look after a chronically sick child or help an ageing family member. The term Caregiver burnout, caregiver stress or burden call it what you will, it’s overwhelming and if left unchecked the stress can certainly take… View Post