I wholeheartedly love my children, Olivia and Sofiya are my entire world. It goes without saying I wish things could be slightly different, I wish they could have a “normal” sibling relationship. It’s so easy to compare my girls and our lives with others, looking at the outward appearance, behaviours and the developmental skills (or… View Post

I couldn’t help but notice that a well-known blogger Harriet from Toby & roo was the talk of the blogosphere and as somebody who’s followed her blog I was intrigued. Her blog post DNA ENGINEERING TO PREVENT DISABILITIES:: WHY I THINK WE SHOULD PLAY GOD has caused quite a shit storm. As a mother of… View Post

When your child is disabled or has sensory issues oral health care can be extremely difficult. Some people with cerebral palsy will struggle with oral hygiene for many factors. Struggling to clean teeth regularly, having difficulties eating or swallowing can play a huge part. Even having behavioural problems caused by not being able to communicate.… View Post

Because of my daughter I see the world through different eyes, she does not speak but she has plenty to say. I am her support. I am her voice. Together we can help make a change. My daughter Olivia is 5 due to complications at birth she suffers from a neurological disorder known as Periventricular… View Post

Recently Olivia came home from nursery with a DVD it showed her having a therapy session & children in her group playing with her, it just reminded me how much I love her nursery. Having somewhere so close to our house that caters for Olivia's needs is beyond amazing. It's the kind of place that… View Post

1. PVL – (Periventricular leukomalacia) is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. The white matter (leuko-) surrounding the ventricles of the brain (periventricular) is deprived of blood and oxygen leading to softening (malacia). The white matter is responsible for transmitting messages… View Post

Children with feeding tubes have them for numerous reasons Olivia has hers because she had an unsafe swallow, cows protein & soy allergy. She was dangerously underweight last year & an NG tube was inserted. We’ve experimented with various meals & supplements this is what we’ve recently discovered that have made a huge impact on… View Post

This September, a soon to be five-year-old Olivia will leave The Early Intervention programme. The natural next step for most families, with a child with significant physical disabilities, is to then begin transitioning their child from a home-based therapy programme to a special needs school. Luckily we have chosen a school (which we’ve just received… View Post

26.03.17 Epilepsy awareness Month & I’ve finally decided to write Olivia’s journey with Epilepsy. It’s ok , you’re going to be ok , mummy’s here it’s ok sssh don’t cry baby everythings going to be ok I would repeat this numerous times a day as another violent seizure took hold, causing Olivia’s body to stiffen… View Post

We spent 3 months living in 3 different hospitals, Whilst our daughter fought for her life. Here is our story. Hiding away at the very end of the maternity ward there is a completely different world. It’s almost as if it’s being kept a secret from the unsuspecting parents to be coming to give birth,… View Post